Cathy Morgan, a mother of a child with Down syndrome, recalls when she received the initial diagnosis of Down syndrome from the doctor: "Her message was 'Legally, you have 24 weeks to terminate the pregnancy and you should do it sooner rather than later because it will be more difficult on you if you wait,' and you're sort of taken aback." She said that she was scared, nervous and disappointed at first but abortion was never an option for her. Now that she has three-year-old Eddie, she couldn't imagine life without him. Raising any child is not any easy job, whether they have 46 chromosomes or 47.
At home, your attitude is critical to your child's development. Here are some Down syndrome facts. While acceptance and social normalcy are a reality now more than ever, your child will still face hurdles with cruel children at school. A Down child is also susceptible to depression, so your love and acceptance is very important. Many parents attend support group meetings through the National Down Syndrome Society to learn how to better care for their Down syndrome child and to address any negative emotions.
Patience is more than just a virtue here; it is an absolute necessity. While your child may learn to breast feed, roll over, walk and talk later than his or her peers, you will still find these achievements just as significant. Set aside time each day to practice daily skills like getting dressed, using silverware or helping with chores. Being organized with a routine, as well as a system of lists, behavior contracts and rewards is the best way to encourage your child against the effects of Down syndrome.
As your child with Down syndrome grows, work on fostering independent skills like bathing, grooming, eating and dressing. This will prepare Down syndrome children for a possible future that includes independent living. Many adults with Down syndrome have their own apartments or live with others in a group home where they can achieve a level of freedom and maturity. The more you engage your child in social activities and the more interests you expose him or her to, the more active and self-sufficient your child will become. Special Olympics, art classes or music classes are hobbies that many disabled children excel at, which improves self esteem and confidence.
Know the health risks of your child with Down syndrome. Find a good medical practitioner who specializes in Down syndrome obstacles. Heart defects, visual impairments, hearing problems and difficulty breathing are all common ailments children with Down syndrome may face. Diet is also very important for the disabled. Be aware that obesity can be a problem, and that high-sugar/additives/preservatives may be upsetting. Try a natural diet with alpha-ketoglutaric acid supplements. You may also need to limit dairy if your child is prone to ear infections. Additionally, a Down syndrome child may sleep poorly, with frequent awakenings and interrupted REM sleep. This could lead to more difficulty focusing and learning, research suggests. Discuss treatment options with your health care practitioner if you suspect this condition may be prevalent.
Monday, December 29, 2008
Do You Understand A Child With Down Syndrome?
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